Thank you for visiting CHRIS & JOHNNY'S CREW fundraising page! On Sept. 16th, Chris & Johnny's Crew Hemophilia Walk Team will be participating in the IL HEMOPHILIA WALK at Lincoln Park in Chicago. This is 1 of nearly 40 sites walking across the country to raise critical funds in the National Hemophilia Foundation's largest event dedicated to finding better treatments & cures for bleeding disorders and support for the bleeding disorder community. To date, the National Walk Program has raised more than $20M dollars as this is the 10th year. WE AM PLEASED TO BE PART OF THESE EFFORTS. This is the 3rd year of CHRIS & JOHNNY'S CREW (Millette & Moore Family & Friends) have participated in the IL HEMOPHILIA WALK. Our goal is to raise over $2500 for this worthy cause that is SO NEAR & DEAR TO OUR HEARTS!
As you may know, JOHNNY (3 years old son of Genny & John Moore) and CHRISTOPHER (19 year old Son of Kelly Millette) have HEMOPHILIA A Severe which means they have less than ONE PERCENT of the Factor VIII blood protein that is needed for their blood to clot efficiently. As a result of this blood disorder, they bruise easily, take longer to stop bleeding and heal, and have to take medication intravenously to help them clot. Johnny is on a weekly infusion treatment regimen & has received over 115 infusions in his short life while Christopher is on daily infusions since he has an inhibitor (his body rejects the medication). We would be lost without the support of these organizations.
Our family is dedicated to continuously learning about bleeding disorders, advances in teatments and advocating in any way we can for not only our boys but the entire bleeding disorder community! WE HOPE THAT WE CAN COUNT OF YOUR SUPPORT TO HELP US IN THESE EFFORTS! Please do not hesitate to call or e-mail with any questions about the 2017 HEMOPHILIA WALK, how you can assist with FUNDAISING efforts or questions about Hemophilia. Hundreds of families in our community, and thousands across the country, will benefit from your contributions and the success of the Walk. TOGETHER WE CAN MAKE A DIFFERENCE! PLEASE DON'T FORGET TO SHARE THIS PAGE!!
WITH MUCH LOVE
~CHRIS & JOHNNY'S CREW ~