Please join me in my fight to make a difference in the lives of approximately 20,000 Americans living with Hemophilia today. About 20% of individuals with hemophilia have hemophilia B (factor IX deficiency) which both my husband and my nephew Logan are afflicted with severely. Many advances in hemophilia treatment have come with high financial price tags. The life-long management of hemophilia places a large financial burden upon individuals and families. In fact, the average annual cost of clotting factor products can range from $50,000 to $100,000 dollars. Complications such as inhibitors, orthopedic surgery, hepatitis, and HIV disease can cause the costs to be even higher. Having adequate health insurance coverage can profoundly impact an individual’s access and quality of care. Hemophilia is a life-long condition. Currently there is no cure, but scientists are actively engaged in finding the cure through gene therapy. One hope is that by inserting a healthy version of the defective blood factor gene, a person with hemophilia will be able to produce normal amounts of factor on their own. The National Hemophilia Foundation raises money for novel technologies and gene transfer research to find better treatments and an eventual cure for hemophilia.

I will participate in the Milwaukee Hemophilia Walk on Saturday, September 30th at 8:30 am at the Milwaukee County Zoo to raise funds for the work of the National Hemophilia Foundation and its chapters. I hope that I can count on your support of this exciting event. Thousands of families in our community, and millions across the country will benefit from your support and the success of the Walk. You can help support me by making a secure online donation using your credit card. Every gift makes an impact and helps improve quality of life for someone living with a bleeding disorder. Here’s how:

  • $ 40: Medical Alert bracelet and service for one year
  • $ 60: Transportation to clinic visits for one family for one year
  • $100: Informational literature for 50 patient families (available in Spanish & English)
  • $165: Funds one day at a special bleeding disorders summer camp
  • $200: Sends one community advocate to Madison to visit with legislators
  • $250: Supports one small group education and networking session
  • $400: Average COBRA premium for one month to keep a family insured
  • $650: Sends one family to the annual bleeding disorders conference
  • $1,000: Provides family camp weekend for one family with a near-camp-age child living with a bleeding disorder
  • $2,500: Educational scholarship for a student preparing for a career with health benefits.

If you don’t have the funds, that’s okay, join Team Varney. There is no cost associated with the walk and if you sign up by August 13th you will receive an official walk credential kit which includes a train/carousel ticket! Raise $100: receive an official walk T-shirt, plus be entered in the 10 for 10 Wisconsin Challenge Raffle to win an Apple iPad mini.  Kids can fundraise too! If you are under 18, you will receive an official walk T-shirt if you raise $25.

Thank you in advance for your support!

 
Sincerely,
Leslie Varney for Team Varney
 

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