We are participating in the Hemophilia Walk - a fundraising event to support the Texas Central Hemophilia Association and the National Hemophilia Foundation.

Hemophilia is a bleeding disorder that affects around 400,000 people in the world. There is currently no cure, but scientists are actively engaged in finding cures and improving treatments. People that have hemophilia are not able to produce certain proteins, preventing their blood from clotting as fast as a normal person.

Bryen is a thirteen-year- old boy with severe Hemophilia B (famously carried and by Queen Victoria and passed to her male heirs) that enjoys doing things that other boys his age does. Bryen is active in his local Boy Scout troop and has dreams of earning his Eagle Scout badge. Bryen is an avid video gamer and enjoys Terreria, Pokemon, Super Mario Bros., and other video games where he can expand his imagination and creativity. Bryen is active in his local youth bowling league and has won several trophies and awards.

Every penny raised for the DFW Hemophilia Walk stays in Texas for Texan hemophiliacs. This past year the Hemophilia Walk helped fund:

  • Camp adventures for 130 children living with a bleeding disorder to attend Camp Ailihpomeh in a controlled and safe environment.
  • Financial assistance for over 90 families which included travel funds for their annual HTC visits and emergency grants to help cover bills.
  • Advocacy efforts on behalf of our bleeding disorders community at the state and federal level (and it’s been a busy year!) where 21 TexCen advocates shared their stories and experiences in Austin and in Washington DC.
  • Over 20 programs and events which included Spanish language based programs for La Fuerza Latina, special workshops for new families and teens/young adults, women’s programming, chapter and regionally based events.
  • A new scholarship program - the Greg McKinney Memorial Scholarship Program - honoring the memory of Greg McKinney and the long-time service and dedication to TexCen of Greg's parents, Bill and Clara McKinney. Greg had severe hemophilia A and was diagnosed with HIV in January 1987, and passed away in 1989.The purpose behind this scholarship is to give back to our community members in hopes it will encourage them to seek out opportunities to improve their lives through education.

That’s why we are raising money and we hope that we can count on your support of this exciting event! Thousands of families in our community, and across the country will benefit from your support and the success of the Walk.

Bryen and the rest of Team Awesomesauce thank you for your support.

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