WTF? Where's Team Flare? We're There Forever! Where's The Food? We Train Frogs! We Take Factor! Wow, That's Fantastic! And... We Thank Family/Friends...
... for supporting my 5th year of fundraising! Thank you!
I am back at it with the 2017 Hemophilia Walk, which is part of the National Hemophilia Foundation that supports programs to help people with bleeding disorders live normal lives, like me.
I am walking with my family and any friends who want to join my team to fundraise for the National Hemophlia Foundation. For the past 7 summers, I have benefited directly from these types of donations, as they help pay for me to attend Mile High Hemophilia camp. At camp, I learn how to take care of myself and my bleeding disorder. In years past, I learned how to mix my own factor and successfully poke myself. This summer, I booted my mom and dad from helping and am doing it all on my own - from ordering my own factor, to planning which days I need to poke and poking myself twice a week. My fastest time from start to finish is 5 min and 42 seconds - that includes mixing the factor, assembling it, cracking a joke and doing the poke. Next summer at camp, I look forward to joining the leadership boys - these are the older boys that mentor the younger boys. I may even let them practice on me like I got to do to the older boys when I was young!
Money raised stays with my local chapter. My local chapter sponsors community activities such as Education Dayz where I hang with my friends from camp.
Your donation will be matched by my mom and dad, and then matched again by Ball Aerospace - so even a small donation will go a long way. Thank you for your help and support over the years!
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."