As we all know, our beautiful baby boy was diagnosed with severe hemophilia A, factor VIII (8) deficiency on January 31st. I'm still learning all of the in's and out's of raising awareness and everything but it's going to be a long road for me and my brave boy. Although it's a struggle to see the bruises and know that it's just the beginning, it's the perfect smile and the eyes that light up when I walk in the room that keep me going. No mother wants their child to be sick, let alone have a condition for the rest of their lives. This is going to be all of our first times doing this walk to raise awareness but I can confidently say that it's the first of many. I'll do whatever it takes to raise awareness for my son and this rare bleeding disorder. My son is my world, he deserves the world. Thank you in advance for donating or joining our team to walk with us.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."