We are excited to be participating in the Hemophilia Walk - a fundraising event to support the Hemophilia Foundation of Oregon and the National Hemophilia Foundation. As most of you know, our baby Dean was diagnosed with severe Hemophilia B when he was about three weeks old when his circumcision wouldn't heal. This was a big surprise to us because the inherited bleeding disorder does not run in our family. Hemophilia is a life-long condition for which there is currently no cure, but scientists are actively engaged in finding cures and improving treatments. With all the exciting things that are happening with the research, we are told it is very possible that Dean will be cured of Hemophiia in his lifetime!
In addition, the Hemophilia Foundation of Oregon focuses on improving the quality of life for those diagnosed with bleeding disorders, offering free summer camps where kids can learn how to self-infuse, couples retreats, family events, support groups and many other resources to families like ours.
So that is why we are raising money and we hope that we can count on your support of this event. Thousands of families like ours in the community, and across the country will benefit from your support and the success of the Walk.
My personal goal is to raise $500 for this cause. Donations are tax deductible and any amount will help! You can help us reach our goal by making a donation on my online personal fundraising page.
We would also love it if you would consider joining our team, whether or not you are able to donate yourself. It is free to register and we would love to have a strong showing of support for Dean on the day of the Walk. We are already working on sewing matching tutus and we will have some other fun props as well! If you want to join the team but can't make the walk, you can register as a Virtual Walker and help fundraise. Please forward this invitation to anyone you think may be interested in participating or donating.
Thank you in advance for your support and together, we will make a difference and help Dean see his cure!
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."