Our beautiful son Raffi Charles Griffiths was diagnosed with Severe Hemophilia Type A at the age of 9 months old. He will be treated on a weekly basis with a study product to add clotting factor to his blood via IV. We want to help Great Lakes Hemophilia fundraise! Research to find a cure is our greatest desire. We thank everyone for their support! Thanks for your support! Xoxo, Deana
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."